tag:blogger.com,1999:blog-991013406417827345.post1710256879715256862..comments2024-03-28T10:02:11.526-04:00Comments on Take a Walk with Me: A Pulmonary Follow upMichellehttp://www.blogger.com/profile/12151314481973711574noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-991013406417827345.post-40789254929222071642010-03-09T22:01:04.465-05:002010-03-09T22:01:04.465-05:00Thanks so much for the heads up about your blog!! ...Thanks so much for the heads up about your blog!! Beautiful!!! And thanks for the update today. Blessings on the good news and God's grace to wait for more. I was sooo blessed by your poetry. I will purpose to pray for little one's speach and swallowing each time I feed Cora; it helps me to connect prayer to something routine daily. I like what someone said above about things all coming at once. That's been my experience with all kinds of learning for little guys. Nothing, nothing, nothing... then the light suddenly comes on. It's often frustrating for the learner only when the teacher is frustrated; so I have to remember to take LOTS of deep breaths for the little ones sake...<br />HOPE is a precious gift and a deep well of solace while waiting... LOVE YA!! BrendaBrenda P. :)noreply@blogger.comtag:blogger.com,1999:blog-991013406417827345.post-25795621375703632722010-03-09T08:28:02.289-05:002010-03-09T08:28:02.289-05:00This is Shelley.....forgot that part...I think it ...This is Shelley.....forgot that part...I think it is going to be that kind of day today.....Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-991013406417827345.post-26778853231366023072010-03-09T08:27:23.079-05:002010-03-09T08:27:23.079-05:00As a therapist, sometimes you go for months and fe...As a therapist, sometimes you go for months and feel like you are getting nowhere...and then POW! it all comes at once. Lillian is that kind of kid - and she will get it. I know she will :DAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-991013406417827345.post-88646418149510804662010-03-08T23:12:38.242-05:002010-03-08T23:12:38.242-05:00One of the things I am most nervous of when thinki...One of the things I am most nervous of when thinking about Marissa being decanned is the future possible need for surgeries. Intubating a kid with an airway history like ours (then add on top of it that Rissa's will be reconstructed) ups the pucker factor by at least a hundred, in my opinion.<br /><br />It IS always something with these kiddos. Their medical needs will continue with them for life. I know it is easy for me to forget that about Rissa sometimes when things are going along status quo.<br /><br />Glad to hear about her lungs though. That is truly something to praise the Lord about!Aliciahttps://www.blogger.com/profile/04061378391288892565noreply@blogger.comtag:blogger.com,1999:blog-991013406417827345.post-91558823031612096832010-03-08T18:17:12.204-05:002010-03-08T18:17:12.204-05:00I meant conquer. So there.I meant conquer. So there.Finding Normalhttps://www.blogger.com/profile/15542473853342128094noreply@blogger.comtag:blogger.com,1999:blog-991013406417827345.post-77095770754333178212010-03-08T18:16:39.723-05:002010-03-08T18:16:39.723-05:00I was JUST crying about this today. It just never ...I was JUST crying about this today. It just never ends and it never seems to get any easier for my darling. There is always something brewing or some new issue to deal with or some new hurdle to concur. And it's getting old. And then I stop and think that it'll probably always be like this, even when (God willing) she's 25, we'll still have issues and hurdles and challenges. And that thought? Exhausts me to the core. <br />You know I'm not one to recommend lightly, but we've actually had good luck with Riley feeding specialist/SLP. She's not warm and fuzzy and she doesn't talk much to Addison, but she has helped open my eyes to some of my thinking and see how I can help Addison improve. I'm not sure you can get in without a dev peds referral, but let me know if you want her info. <br />Hang in there. Some days by the skin of your teeth. One day at a time, sister.Finding Normalhttps://www.blogger.com/profile/15542473853342128094noreply@blogger.comtag:blogger.com,1999:blog-991013406417827345.post-17097509793626919822010-03-08T18:05:20.694-05:002010-03-08T18:05:20.694-05:00Hello! OK, forgive my ignorance, but could eating ...Hello! OK, forgive my ignorance, but could eating and speaking possibly be easier for Lillian once her stoma is closed? Or does it really have nothing to do with it? <br />And sorry but your speech path, should not be showing signs of discouragement!!! <br />other than that it's good to hear from you. And no, BTW, you're not complaining and so what if you were. You have the right to.<br />Lillian been through enough to last a million life times.<br />Hugs and prayers!Stephaniehttps://www.blogger.com/profile/10792117187001612101noreply@blogger.com