Friday, February 19, 2010

A better pic and quick report


She has strep. I'll take it! She is still miserable, but at least we can treat it.

Thursday, February 18, 2010

If you're wondering where we are...


Life has been so busy. I'm feeling very neglectful of Lillian's blog. I haven't posted anything in such a long time. Mostly, I get to sleep at night...which is a VERY good thing!! Seriously,though, just a quickie note to update how things are...let's see...Lillian goes to school in a private room with no other kids twice a week for one hour. She receives 30 minutes each of PT, OT, ST, and education time. That happens on Mondays and Thursdays. Tuesday and Wednesday she has speech therapy at another facility half an hour from home and Wednesday afternoon she receives PT and OT co-treat at another facility in Seymour. It seems that is all I get done all week is running to and from therapy. I don't know how I ever worked outside my home. Kudos to those Mamma's out there doing both. Days like these I totally and completely feel so grateful that she was able to have First Steps in our home for those first three years. Whew.


Feedings-well, not so good. Feeding by mouth is going very slow. While she enjoys tasting, she doesn't love to swallow. Speech---maybe just as slow. Not really saying anything more than ma-ma. These two areas in particular allow me to become easily discouraged. I know I know I know it will all take time...however, the realistic part of me has to look at the possibility that it may not happen. I know there are folks out there thinking I just need patience...I feel like I am, but you have to look at both sides of the coin from time to time. It's difficult.


She is making progress physically as well, she is trying more and more to jump and run, but I'm sure that will come in time.


As always, she is sweet and precious and loving and happy.


This winter has been much more gentle for my sweet other than little illnesses such as ear and sinus infections which really take a toll on her, but PTL no hospitalizations. She is, however, sick currently with a raging fever and unable to keep anything down. We will be heading to the pediatrician this afternoon. I leave you with a picture of her in her big girl bed, which she happens to LOVE!

Monday, December 7, 2009

MOTY strikes again...

Folks, it is official. I am totally the winner. I know you are all thinking in your head that you are the MOTY. Well, today, I, yes, I have conquered all and am the big winner. So, today is a school day for Lillian. Now, on her first day of
school I got a speeding ticket....yes, a speeding ticket. First one of my life. Well, a short week later, today, I go out to heat up the van as there is snow on the ground and I figure it is only fitting as a good mother, to heat up the car. At some point in the trek, I have opened every door to the van minus the back. Come in, get Lillian in her coat and head back out to the now warm car. I get her buckled in, open the passenger door and turn down the radio, and then proceed to shut all the doors. Go around to my door, pull the handle and no good. Get that acrid puke feel up my throat and come to realize that ALL, yes ALL the doors have somehow locked after I shut her door. So there I am in the 30 something degree weather, baby locked in the car. One of my nightmares come true. True to my being, I begin to quietly panic and call my hubs at work. Already in tears I am asking his boss to speak to him. Through panicked tears tell him what is going on. World's fastest phone call ends and he gets here thirty minutes later. I stand at the side door with Lillian telling me in signs that I stink. I did not regain feeling in my ears until close to three oclock. This spurns her worse EVER drop off at school. Not my day. Praise the Lord for watching over us and keeping her safe. So- even though I did not lock the door, they locked and I now truly have a complex. If you are having a bad day and feel like a worthless parent..just think of me. You will feel better.




I leave you with some pizza loving Lillian pics.
Ok, sorry for the disorganization...I can't seem to move things around...is this a blogger thing or dumb me thing?