We had Lillian's routine pulmonary appointment today. Aside from a long, rainy, delayed drive down due to accidents and construction, our appointment went well. She sounded good. We got a new mask for her treatments as she has been struggling with some form of dermatitis on her face for at least a couple years. He asked about her flu shot, which I have forgotten...again. They were going to give her one, but they didn't have any. He wants to see her again in four months...we still have been unable to get her gentamycin breathing med because it's on a nationwide back order. Also, being on the remicade infusions decreases her immune system. He told us to closely watch for "sick" symptoms.
Something I didn't mention yesterday in her urology update is they were wanting to refer her to a pediatric gynecologist. Please pray for discernment for us.I'm also just slightly overwhelmed at the thought of adding another -ist to our growing list. She needs some intervention in that area and I just struggle with the thought of more medication, especially the kind they will want to give her. Please pray for speedy reimbursement of her stomach meds. We are now into our 4th month without reimbursement...I am so grateful for it being reimbursed, but we have to charge it each month to get it and that adds up as well.
She has her fourth treatment next week. Pray for smooth sailing and no reactions. We still have to have an xray on her hand due to her finger issues.
Matt started a new job after 21+ years at his previous employer. Continue to keep him in prayer.
No comments:
Post a Comment