Guardianship: We did go to court for legal guardianship and the judge approved our petition...there you have it folks...we're LEGAL Ha! I still need to get her to SSI to file for disability but time has been not been on our side.
Adult GI: She saw her adult GI for the first time and it was a great visit. She is scheduled to start her infusions at the adult infusion center come the end of March.
Toe Warts: the warts we had been so aggressively battled on her toes just disappeared. Craziest thing ever, but really a miracle. No dermatologist after all. Whee!
Flu: the flu finally caught up to us from little brother who was home sick about a week and Lillian came down on the Saturday just as he got better. It has been rough. We've been dealing with that this week and it has been rough on her. She still needs frequent treatments but she is sleeping much better. Again, so grateful to have managed this at home. She's finally up and trying to eat again, which even though she doesn't swallow this girl likes to chew. She's chomping on sour cream and onion pringles as I type.
Pulmonary: we do NOT have to move to adult pulmonary at this time which I'm grateful for.
I am now Lillian's home health aid. Since she turned 18, I was able to take classes and be state certified to be paid to be her health care worker. A HUGE BLESSING.
A note about me: I did have surgery on January 31st. The surgery was not able to be accomplished the "easier" way, so I have been recovering from a very invasive abdominal surgery. (think of a gutting a deer or dissecting a frog in biology, yes, I'm serious) I spent four days in the hospital and have been slowly, steadily recovering. I still have lots of restrictions for activity. I'm still sore and I've discovered muscles in my legs I didn't know existed. I would ask your prayers as I will undergo chemotherapy very soon for a period of three months. I rest in the sovereign Lord and knowing none of this surprises Him. Am I nervous? Yes. I'm concerned about my ability to care for children, especially Lillian. Not to mention maintaining my home. I do have a wonderful village of caring friends and family as well as all you prayer warriors out there. Keep them coming.
I'm tired. 😐 This healing and Lillian's sickness have been a double whammy. I'm grateful we are heading into a warmer season.
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