Dr. Lungs

 We had Lillian's routine pulmonary appointment today.  Aside from a long, rainy, delayed drive down due to accidents and construction, our appointment went well.  She sounded good.  We got a new mask for her treatments as she has been struggling with some form of dermatitis on her face for at least a couple years.  He asked about her flu shot, which I have forgotten...again.  They were going to give her one, but they didn't have any.  He wants to see her again in four months...we still have been unable to get her gentamycin breathing med because it's on a nationwide back order.  Also, being on the remicade infusions decreases her immune system.  He told us to closely watch for "sick" symptoms. 

Something I didn't mention yesterday in her urology update is they were wanting to refer her to a pediatric gynecologist.  Please pray for discernment for us.I'm also just slightly overwhelmed at the thought of adding another -ist to our growing list. She needs some intervention in that area and I just struggle with the thought of more medication, especially the kind they will want to give her.  Please pray for speedy reimbursement of her stomach meds.  We are now into our 4th month without reimbursement...I am so grateful for it being reimbursed, but we have to charge it each month to get it and that adds up as well.  

She has her fourth treatment next week.  Pray for smooth sailing and no reactions.  We still have to have an xray on her hand due to her finger issues.  

Matt started a new job after 21+ years at his previous employer. Continue to keep him in prayer.  

Renal Ultrasound and Stuff...

 Lillian had a routine renal ultrasound today to follow up on her kidney problems.  Our appointment time was 2pm.  I had a daughter planning to pick up Ezekiel, but by the time I got to KY, that daughter had to tend to a medical issue that arose on her end so my stress level went up. Matt started a new job today so he wouldn't be home until later....I did get another daughter to pick him up...but it was just a bit stressful.  We had the ultrasound and had quite a bit of time yet before her appointment with the NP.   We checked out the gift shop and watched some fish get fed and moseyed on down to her dr office visit.  We were early, but not terribly.  I gave the girl her name and her next response was, does she have an appointment?  I said yes, at 3:40.  She replied, Oh no she doesn't we called and cancelled that appointment this morning and rescheduled her for tomorrow.  Her provider is sick today.  She continued to repeat to me that a message was left on my machine very early this morning.  I said, I've been home all morning until 1pm and no call, no message.  She confirmed numbers and then continued to tell me a message had been left, then confirmed my cell number, which no one called either.  We already have an appointment in KY Wednesday for her lung doctor and I told her I'm NOT coming tomorrow.  PS- I still have no voicemail or even call from their office on my caller ID.  So, of course the practitioner is booked for all her virtual calls and office visits for who knows how long.  So in the end, they'll just have to talk to her and call me back. 

We made our way back to the valet to get my van, and the tears about to spill and I'm like no, don't cry...not going to cry... when my cell phone rang and the manager of the of the practice called to tell me the NP had a migraine and couldn't come in today.  I said, I understand her being sick,( and of course I start to cry) I do not appreciate being told over and over again a message has been left on my voicemail when there has not been one of why no one would contact me via my cell phone.  It's a huge inconvenience to us.  (side note...I really try not to complain about money, I  struggle REALLY hard to be content in our situation,  but HELLO...gas is 4.00 a gallon....it's not a short trip to KY)  I told her I have no interest in being double or triple booked for an appointment because I've already been told she is booked, so she insists on us having a virtual call tomorrow with the NP.  Oh- and make sure Lillian is present for the call. Um, ok...because this certainly requires her to be seen I guess...as if her renal ultrasound isn't enough for her to see.  

So, virtual appointment...and Lillian must be present.  I'm tired.  That's all.