Friday, June 19, 2009
We are in the process of getting new therapists....our PT and ST are not going with us when we move. So I've made choices, just waiting to hear back from our coordinator.
Found out bc of her medical history she may be eligible for homebound schooling through the school system...that makes me a lot more comfortable about school.
We have dates in KY for pulmonary, cardiology, and ENT coming up this summer. I still need to schedule her opthamology but there is so much going on.
Tuesday, June 9, 2009
BTW- she and I were in the bathroom this morning and she picked up a stick of deodorant that fell on the floor and acted like she was putting it on....I am just so amazed. Do all two year olds know where deodorant goes??? Tickles me to death.
PS- sorry for my made up vocabulary, but that's how I roll :)
Monday, June 8, 2009
He did have a look at her mouth and he was so impressed. He said it was one of the best palate repairs he'd ever seen.
Gotta go, she is supremely unhappy right now. She needs her Mamma!
Sunday, June 7, 2009
Saturday, June 6, 2009
I was sitting by her side waiting for her to fall back into sleep wondering...wondering if her stares were seizures or just the sleepiness you fall into before you go to sleep. If her jerky movements are because she's chilling or something else is going on. Oh, LORD, how the fears creep in. I wonder, how long can a little body handle so much before it can take no more. I sit here wondering.
Lord continue to hold her in your arms, give her rest and healing. Give me peace.
Wednesday, June 3, 2009
This JUST IN---she just successfully sucked out of a straw!!! WOOO HOOO!!
Decann here we come....
Tuesday, June 2, 2009
Thank you so much for praying, her feedings seem to be improving. We are not up to full feeds, but I believe we are making some headway. I thought the same thing yesterday and then at seven she puked the motherload. The nights have been kind of bad from an equipment standpoint, but I guess that's just par for the course. The house is slowly getting boxed up so now we live in a maze.....I can't wait to get that over with. Will remember to update tomorrow.