Wednesday, June 3, 2009

Back with Peace of MInd

I don't know if I feel so peaceful bc the surgery is over or because I really like the surgeon. He is just awesome. He said her mouth looked good and he would see her again in three months unless there are problems. He is connecting us with a pulmonologist, cardiologist, and ENT for the time being (which his scheduler is handling for us) so we can get to taking this trach out. He is very concerned with getting her speech and feedings moving. He keeps saying she is missing prime developmental time for these things. He evaluated her brachial plexus injury and said at this point, therapy is the best scenario, any intervention would really just torture her and be of no more benefit.

This JUST IN---she just successfully sucked out of a straw!!! WOOO HOOO!!

Decann here we come....


  1. wow sucking out of a straw!!!! way to go girl how amazing is that.

    So nice to a surgeon you love isn't it. glad to hear you got good news.
    Don't worry about the development time you missed. Ashley didn't eat a thing for 2 years and she chews eats almost anything now. She will catch up i bet with some time.


  2. See, good news keeps coming.Sucking out of a straw pretty impressive!Good job!

  3. So glad that you returned with peace of mind! And, YAY for drinking out of a straw! That's huge!

  4. Wow, that is awesome!! Sucking out of a straw! Woo Hoo!!

    My sister Michelle was born with a sub mucousal cleft palate and we didn't find out until she was almost labeled failure to thrive. Luckily, hers closed on it's own, but she went through several years of speech therapy. Now SHE is a speech therapist working in our local hospital!! Your straw story reminded me of when her ST would come over and have Michelle work with bendy straws sucking and blowing. We always had a box of straws and I was so jealous because we other kids could not use them, they were for her only. :)

    So glad you are happy with the surgeon. Finding someone we jive with is half the battle!

  5. That is so Awesome!!

    Isn't it great when you find a doctor who knows what he is doing and wants to help. that is the thing...wants to help. I just went to a stomach doctor for michaela and I just got the feeling he really didn't care. I also got the feeling he thinks I don't know what I am doing.