Friday, June 19, 2009

So much

Lillian is finally getting full volume feeds...wahooo. I'm a little gun shy to even type it out. I tooke her with me to Auntie Marcia's so the big girls could swim in the lake and it was really humid. I think it was not so good for her because today she is yucky. Her feedings are still going ok though. PTL. It thrills me to no end that she is not puking.

We are in the process of getting new therapists....our PT and ST are not going with us when we move. So I've made choices, just waiting to hear back from our coordinator.

Found out bc of her medical history she may be eligible for homebound schooling through the school system...that makes me a lot more comfortable about school.

We have dates in KY for pulmonary, cardiology, and ENT coming up this summer. I still need to schedule her opthamology but there is so much going on.


  1. I'll say a very quiet "wahoo" with you about the full volume feeds!

    I hope things settle down for you soon and you and the girls can actually enjoy the summer.

    Have a great weekend!

  2. Wow,sounds like you are super busy, but things sound good.

  3. I pray that the NO puking continues for you both! It's the little things in life that we need to be thankful for, right?! Although, in your case, no puking is probably a huge thing and blessing!

    Have a great weekend! I hope that moving is going well for you! HUGS!

  4. It sounds like she's having a great week. The home bound schooling sounds like a good idea especially if she's still at high risk for illness. Can you still get therapy services if she doesn't go to school?