Lillian is finally getting full volume feeds...wahooo. I'm a little gun shy to even type it out. I tooke her with me to Auntie Marcia's so the big girls could swim in the lake and it was really humid. I think it was not so good for her because today she is yucky. Her feedings are still going ok though. PTL. It thrills me to no end that she is not puking.
We are in the process of getting new therapists....our PT and ST are not going with us when we move. So I've made choices, just waiting to hear back from our coordinator.
Found out bc of her medical history she may be eligible for homebound schooling through the school system...that makes me a lot more comfortable about school.
We have dates in KY for pulmonary, cardiology, and ENT coming up this summer. I still need to schedule her opthamology but there is so much going on.