Friday, August 18, 2023

Out of sorts and edgy...and Dr GI appointment

 That's been my day.  That is how I've felt.  Can't really say why.  That is not my general disposition.  I'm tired and haven't slept well in months for several reasons which I won't go into, so why don't I just quit whining and get to the update.

We saw Lillian's GI dr today and dietician.  When the nurse took us in the room, she stated a med student would be seeing us first and then the Dr.  I was not thrilled.  I didn't want to go through her entire history with a new person.  And I almost said as much, but I bit back my words.  When the student walked in, I knew her immediately.  She had been on Lillian's team the last two times she was admitted.  She remembered Lillian when she saw her name on her list this morning.  It was nice to see her outside the hospital setting.  

So....she is going to be scheduled for another scope to see if she's in remission.  He still wants me to try to collect stool samples.  Good times never end here...HA! Now I will have to contact her pulmonologist and hematologist to see what they want to do medication wise prior to the procedure because she will be under general anesthesia.  Due to her history, she will also likely have to have a 24 hour stay just to be on the safe side. 

She gets her infusion this coming Wednesday and after the scope we will have a forward progress plan.  

In other news, I didn't blubber like a baby this time. I told him I was pretty stable today and he was like no it's ok, you can breakdown it's fine....LOL.  He probably has to pep talk himself when he comes to our room.  

Thursday, August 10, 2023

Grieving

 My 91 year old grandmother took her last breath last night. She was admitted to the hospital a week and a half ago with difficulty breathing.  She's overcome a lot in the last few years, breast cancer, a ruptured bowel and sepsis, rehab and then back to living on her own.  Several weeks ago she took a tumble down her concrete steps and had been in a lot of pain.  It's a long story, but the end is, she was relieved of her suffering last night.  

It has been a long week and a half.  She had her mind up to the very end until the morphine took over.  She knew it was the end. 

 The grief is suffocating.  

My grandma played a huge role in my life as a child and as an adult.  She was my safe, soft place.  Mostly. Ha!  

Lillian seems to understand, I think.  She cried as hard as I did last night and that was doubly awful.  So today, I'm trying to bite back my tears so she doesn't suffer too.  

Pray for my mom and my uncles.  This is hard.  She'd probably kill me for posting this picture.  Fairly certain she's holding Ezekiel in this one and that is a real smile!! 


Ecclesiastes 3:1-15