That's been my day. That is how I've felt. Can't really say why. That is not my general disposition. I'm tired and haven't slept well in months for several reasons which I won't go into, so why don't I just quit whining and get to the update.
We saw Lillian's GI dr today and dietician. When the nurse took us in the room, she stated a med student would be seeing us first and then the Dr. I was not thrilled. I didn't want to go through her entire history with a new person. And I almost said as much, but I bit back my words. When the student walked in, I knew her immediately. She had been on Lillian's team the last two times she was admitted. She remembered Lillian when she saw her name on her list this morning. It was nice to see her outside the hospital setting.
So....she is going to be scheduled for another scope to see if she's in remission. He still wants me to try to collect stool samples. Good times never end here...HA! Now I will have to contact her pulmonologist and hematologist to see what they want to do medication wise prior to the procedure because she will be under general anesthesia. Due to her history, she will also likely have to have a 24 hour stay just to be on the safe side.
She gets her infusion this coming Wednesday and after the scope we will have a forward progress plan.
In other news, I didn't blubber like a baby this time. I told him I was pretty stable today and he was like no it's ok, you can breakdown it's fine....LOL. He probably has to pep talk himself when he comes to our room.
I admire your fortitude.
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