Not great. Not great. She's been to 3 and we have experienced the same nurse. In all my years working in healthcare, I can't even think of a nurse who ever behaved in front of a patient this way. She curses, she's always at a 10. She's never mean to Lillian so to say, but this last time was all I could take. Admittedly, I have been in a hard place these last 6 months, surgery, chemo...maybe I'm just tired, but I just can't even think of dealing with her again. So, we saw GI for follow up and we are switching locations. Please pray this is a better experience. If you know me, you know I do NOT enjoy all this upheaval with new doctors and locations and such...AND even though she is 18, she's not an adult. It's just inappropriate, this nurse even refers to herself as the inappropriate nurse and she thinks it's funny. Well, I just don't think she really cares. What really gets me is I think she's just bitter and sad, and that's sad. I also get annoyed when they miss her veins or blow them which is usually what happens and they blame it on her. "she's dehydrated" "caffeine is bad" Lillian gets the same diet, fluids, nutrition every day around the clock. Also, I mistakenly grabbed the wrong extension tube for her meds and they had no means of giving them, so most of it wound up on her clothes and then the nurse asks me when do I want to start her infusion???? HELLO. So, that was her July 3 infusion.
She did start receiving SSI at the end of May. Much sooner than we expected. She also got accepted to the bigger waiver which we are still hanging in limbo for. She has had appointments with GI, Pulmonary, Gynecology recently. All went fine, Her cycles have been controlled since January, but of course she has one days after we see the Gyno. UGH.
I am delighted to be finished with chemo. My blood marker is normal and will start getting scans every 6 months for a couple years. (and blood work) I did get a kidney infection after my last chemo and it was rough. He said that is kind of common for people after chemo ends. My symptoms were so much worse with the last treatment and lasted much longer. He said that is typically with the drugs I was on. I am starting the feel much more normal. I still have chemo brain...it is real. I can't believe it is August and school has started. Pray for Ezekiel, he started in a brand new school. He says it's good and even though I know it was the Lord's leading, I felt bad for him not being with kids he's known his whole school life. We didn't move so I know those friendships will remain.
Sorry for the long gap in updating, but chemo. I think that's all I need to say. Thank you for your prayers, love and support. The journey continues. <3
