Our new infusion center was wonderful SOOOO glad we made the change. The room was the biggest we've ever had and the nurse was amazing. We had a little trouble getting liquid benadryl, but it shouldn't be a problem in the future.
She saw the dr in the bone density clinic...which was just a visit with another dr. They ordered some xrays and blood, all of which were normal. I think at this point we will continue to have to have bone density scans yearly.
Her vitamin D was normal, which makes me happy because that means she's absorbing. She's also over 100lbs which is great.
She continues to love church and has started spreading herself around the church with different friends. During worship, I often have to look for her because she is somewhere waving a flag.
We took a trip to the Ark Encounter, and she enjoyed that, riding in a stroller donated to us from another special needs family. There are fake animals in crates, and she kept talking to them like they were puppies. When we went to the buffet, the kind cashier did not charge us for her, which does not happen for us very often. I didn't expect it, and did ask for a child's price, but she just didn't feel right about charging us even for that. It was a perfect day, good weather and not crowded.
Her birthday is coming up. 19. 19 years. She is SO excited for her birthday, if anyone would like to send a card, she LOVES to get mail.
She was approved for the bigger waiver, we've jumped through all the hoops, but we are still in holding. "waiting on the state".
She has started having some rough behaviors towards me when it comes to her personal care, even hitting me at times. It has been a mental mind field. That is hard. On a daily basis. It is hard. To add to that I get NO grace from some of those closest to me. Menopause Michelle (or post chemo Michelle or WHATEVER) is struggling. If you see me and ask, how are you and I respond I'm ok. That's exactly what I mean. I'm only HUMAN. Jesus help me.
By the same token, I'm grateful to be alive. I'm grateful to be able to dry my hair standing up again.I'm serving again. Am I tired sometimes...yes.
Anyway, that's all for today. Thanks for your prayers and love.
