Infusion day

 Yesterday Lillian had her infusion in KY.  It went smoothly, except for the IV which seems to always be an issue.  We got a nurse we knew and I'm starting to recognize people, which is interesting because this is only the second time we've actually seen their entire faces.  No masks.   We are due to see her GI doctor in two months and make some decisions about her next scopes.  They were not joking when they told us her immune system would be compromised.  I can't remember her being sick so much since she was a little girl.  I don't like it.  She's even gotten to the point that she begs me to take her to the hospital.  Heart.break.ing.  I'm not sure, at this time, how much longer we will continue to have the infusions.  

Matt is doing well, still in cardiac rehab and still not yet working full time.  He struggles with fatigue.  Pretty normal I think.  

After our all day event in KY, we had another BIG even to attend that evening.  Our fourth daughter, Madeline, got married to her long time boyfriend in a small, private family ceremony on her now,  Grandparent-inlaws property.  It was short and sweet which is what they wanted.  Hard to believe I have another son-in-law, though we treated him like family anyway.  We enjoyed getting to meet his parents and grandparents.  I cannot believe I have three married kids.  Lillian was not happy to not be involved in the wedding, but she quickly got over it and enjoyed being there.  

Thank you for continued prayers as we "juggle" a lot of stuff in our lives.  

Here's a little snapshot of last night.