Endocrinologist visit

 Today Lillian saw her new Endocrinologist.  I really liked him, very nice doctor.  He spoke to Lillian, which is always a bonus to me.  So, all good news to report.  Her DEXA scan is actually in normal range for her.  He did xrays to check for any spinal compression fractures and there were none.  He recommended another DEXA scan in a year to see how the depo may or may not be affecting her.  We don't need to get with him again unless she starts having weird, unexplained fractures.  He said she's high risk simply because she has chronic illnesses.  It is so refreshing and rare to have such a positive appointment.  Changed my whole day.  

Her pediatrician contacted me directly yesterday to apologize for the missed lab test.  I'm supposed to text him again if she doesn't seem to be responding to the med they put her on.  

In two weeks, we follow up with her GI and pulmonary doctors.  

I was struggling today.  I can't quite put my finger on why other than the general frustration I feel when she's failed by the professionals we are supposed to depend on and the fact that no matter what I cannot change it or even vent my frustration about it.  Maybe it will help with some other child, I hope, who won't fall through the cracks.  Sometimes, I feel there is a rage buried deep inside, with nowhere to go.  Noone wants their child to suffer needlessly and that creates a helplessness inside that is heart breaking.  And now, there are tears stinging my eyes and a lump in my throat.  

Today was a good day.  This is the day that the Lord has made.  I will rejoice and be glad in it.