Last night was truly a bad night. The nursing staff was negligent and just plain lazy. I did have the opportunity to speak to an assitant manager, but after some thought today, I don't think I will stop with that. Bottom line, if a child is admitted for having a trach stoma closed so that sats can be monitored....if there is a desat DON"T call in my room and ask "can I help you?" , or scream it three times. NOT at 11pm not at 12AM not at 4AM, NOT ALL NIGHT LONG. BTW, if there is no response from a nonverbal three year old toddler in a twin bed, certainly do not sit on your butt and IGNORE that there is an alarm coming from the room. SEND her nurse in when asked or send SOME ONE when it is asked of twice. AND NOT half an hour AFTER it was requested. DO NOT ignore me at the nurses' station and certainly please don't let me interfere with your idol chit chat so I can have a blanket to sleep with. The list is long and I could add a lot more, but I will stop. You get the drift. Basically, Matt had to have someone drive him back down to KY this morning and miss work again to drive us home bc I simply could not drive having had only two hours of hazy sleep.
The trach stoma is closed now and I'm hoping the scar is not too wicked. It looks like a really jagged t shape. She was pretty uncomfortable yesterday, but seems to be doing fine tonight.
There is nothing that feels better than being home and sleeping in your bed. Thanks so much for all the prayers.