Ok, if you are not interested in reading the psychotic rampage of this mother, you may want to skip to the next paragraph. We have been having troubles with our supplier of Lillian's medical supplies. I ordered apnea monitor patches for her two weeks ago and still have not received them, and being told every day that they would be here the next day. Long story short...they want me to strap her into the emergency straps of the monitor....I'm sorry, you'd just have to see that to understand it.....not going to happen...at any rate, once again...people who have no clue what it is like to care for a special needs child. It is very incomprehensible for me to grasp the mentality of these people. People who are pushing papers and have no clue what your child's life is like. Treating your child as if they are not a person, but a mere inanimate object. Of course, it's not Praxairs fault (the supplier) and it's not Clarian's fault (the micromanager) according to both companies. GRRRRRRRRRRRR
Lillian was running a bit of a fever this morning but seems to be doing well for the rest of the day. I took her to the doctor yesterday bc she ran a fever all day and acted miserable, but nothing showing up on exam. She is currently still napping. Her feedings have still not been going too well, and pardon the frankness, but her poops are looking like cockelburrs as Matt likes to say. My sister pointed out today that perhaps she may be teething....that had not even crossed my mind, but perhaps the culprit of the recurrent fever. Hmmm, maybe baby. I'm supposed to be giving her enemas every night to make sure everything is nice and soft and keeps moving.
She was so cute today laying in my bed on my pillow teasing me that she was in my spot. Too funny. She also dragged her Dad's guitar into the living room and played that for awhile. I'm sure he would not approve, but what he doesn't know won't hurt him, right? LOL.