More influenza

Lillian has tested positive for parainfluenza type 3. She had a HORR-IBLE night full of 104 degree temps and vomiting and now diarrhea. They are starting her on IV anitbiotics for her ears as they are pussey as ever. She was not able to tolerate her first feeding today, so back to pedialyte we go. Her trend is usually to look good and then tank after about two days, so that is what I'm hoping doesn't happen, BUT as this virus takes hold of her, I will not be surprised if she does. Her sats bounce around from 97 down to 92. We are a hop skip and jump away from O2. She is mighty unhappy as well. That's the story as I know it for now. Good old respiratory virus AGAIN.

What a difference 8 hours can make

Lillian woke up at 5 this morning coughing and vomiting and has been wretching all day. She is miserable. She's running a fever and basically lethargic. We are headed to the pedicatrician to get their take and if admit is necessary maybe we can avert a Riley stay. Or go direct admit if possible. My bag is packed so I'm prepared. Say a prayer. She is breathing pretty hard as well. ugh.

Busy Morning

Lillian had a fabulous day. We had ST where she tried some news tastes and she also played on the computer some. Then it was off to school to make our copies. She was such a ham smiling and loving on the staff. I think they might be in love with her too. She got to play at Amy's desk but not before being scared to death by one of the very tall teachers. She's sometimes more afraid of men and this particular teacher was well over six feet tall and had a very deep voice. She got to crying and had one of those non-breathing/coughing/puking episodes. I wound up covered in vomit, and poor Amy---she jumped right in there with the burp rags, but it scared her to death. My buddy, Deb, was there to help out with the suction thank goodness. Woo, it was a busy morning. We made a visit to Isabelle's class and a visit with Rebecca's teacher. I swear I think we disrupt the whole school when we are there. All in all, Lillian had a fantastic day. Feedings are still going pretty well---and I am so thankful. I think her ears and greenies are clearing up which is all good. 0h-almost forgot-daddy took Lillian to the park and she had a ball.

OUUUUTTTTTT

Ok, I know this is dark and the best part was her face, but this is Lillian asking Maggie if she has to go out!! HILARIOUS!!

We've also found some new favorites around this house. She loves the movie Charlotte's Web. She fell asleep yesterday while Fern was singing to Wilbur. We've also found that she loves Grandma's mandoline. We took lunch to Grandma Monday and Lillian even got to "play" some mandoline. She was also doing the funniest thing to Grandma's cat. She was immitating Grandma trying to get Lucy, her cat, to play spider kitty. Too cute. It also didn't take long for her to get comfortable at Grandma's house to start wrecking it. Woowee this girl can get into things faster than I can blink. The other funny thing that she likes is the JG Wentorth commercial. I can't figure out how to post a youtube video here, but I would if I knew how. It is so funny, she will stop dead in her tracks whatever she is doing to watch it.

>>>>>>>>>MOTY ALERT>>>>>MOTY ALERT>>>>>>

Did I try to pull Lillian's pants out from under her feet so she wouldn't fall and wind up knocking her flat on her back? Was I trying to comfort her after her wretched PT session today and accidently bumped her face right into my chair arm? Um yes...so you see, I keep on keeping on with my impeccable mothering.Funny, I went back to a year ago in this diary and found out that we were having ear troubles this same time. Strange isn't it?

Welcome to my journey

I created this blog as a take off from Lillian's other web site. Follow her medical journey, her unfolding life, and God's unending love for His children. We never expected the way life would unfold for Lillian or for us when we were blessed to know we were having her. I created this journal initially in hopes of keeping family and friends informed about her progress. I also hoped our faith in God and the hope we have in Him would shine through this experience and be a witness to others. I've been blessed through blogger to meet other special needs Mom's and maybe this is a chance to reach out to someone else in the same situation. I invite you to join us on this walk, laugh with us, cry with us, pray with us as we continue down this unknown path God has placed before us.