Friday, August 19, 2011

Reality reminder

I see the progress Lillian is making as she accomplishes new things. I LOVE it! There is unspeakable joy to see her run, walk, or even swallow a piece of cereal. Yesterday, I had the opportunity to watch her in her physical therapy session. It was such a reality check of how hard she works to do things I take for granted. I posted a video a while back of her riding her tricycle. She can push the peddles about three revolutions and that is it. When I asked her therapist why she thought she only did it three times she said, "that is all she has the strength to do". It was like my heart was being squeezed. It reminded me how truly hard it is for Lillian to be able to do what she does do on a daily basis and a realization as to why she sleeps as much as she does. Sometimes, I guess I'm living in a fairy land. Maybe I can't even convey how I feel, but just to realize how much work it takes her to do what she can do. I love that she can go up and down the stairs with assistance, but it never really dawned on me how much strength it takes her to do so. I'm not even sure why I'm writing this, just on my heart.

1 comment:

  1. I'm cleaning out Jax closet and finding a lot of stuff from long hospital stays. Man sometimes I just need a humble reminder of what he goes through on a daily basis to just stay alive. Its amazing how strong our kids are!