Monday, August 29, 2011

Dr Lungs orders a bronch

We saw Pulmonary today. He wants Lillian to have a bronch done in two weeks. He's going to do a ciliary biopsy, BAL, and a flow somethin' or nother...I don't have the orders right here, or I could type it up. ANYWAY, it is a more in depth way to study her immunity. He also said her sinus CT was very severe in the stuff it showed in her maxilla sinuses. Very unusual...hmmm, we've heard that more times than I care to think about, right? When does my child do anything in the typical fashion? He said she also suffers from some type of rhinitis...can't recall his exact wordage..but it causes her to react much like someone with allergies, it just doesn't show up in allergy testing. So, back on nasonex...OH- AND, I told him we stopped using cingulair...and he said....sinus infection is a side effect of the that for real? I mean seriously, I could have been making her sicker all along. Geesh. Or whichever one of them ordered it for her....crikey.
He ordered another chest xray bc he hadn't done one for her in a while, so we will do that the same day as the bronch. She will be in the bronch about an hour.
I kind of sit on the fence about this whole bronch thing. It won't really change the treatment regiment for her...BUT it could rule out further issues.
We have thought she was getting sick again for several days, she just isn't her "normal" self. He said her right ear is starting to drain. At least I know I'm not a crazy person, I think....
Her V&E has been rescheduled to next week, which is fine with me, one trip a week is enough for this woman.

On happier news, she was in the bathroom the other day, "straightening" her hair with a flat iron. All was good until she attempted to plug it in... crisis was averted, but she gave up on the task once I wouldn't let her plug in. She's a smart little cookie, that girl.

1 comment:

  1. Hi
    My name is Jenna and I came across your site. Your daughter is beautiful, precious and special earthly angel. She is a courageous, strong and determined fighter. She is a brave warrior, smilen champ and an inspirational hero. I was born with a rare life threatening disease, and love it when people sign my guestbook.