Wednesday, May 6, 2009

Updates ----

Lillian's weight wasn't as bad as I thought it would be. She's at 21lbs. PTL. He's changing her prevacid to nexium, so we'll see how that goes.

Stupid Medicaid lost her paperwork AGAIN and I have to take her back in there to give them the documents for the THIRD time. You, know, she needs this additional insurance. I'm so disturbed that they've lost her birth certificate I don't know what to do or who to complain to.

She was quite the stinker during her therapies today. Not being cooperative and such. Rotten. God bless our DT. She brought me Rally's for lunch. I LOVE her for being so good to me!!I should just give her a 20.00 and see if she'll bring me lunch every Wednesday....what do you think Shelley???(btw, we forgot all about them wings.

I got her some interactive story book CD's on ebay and they came today, but it wasn't exactly what I was looking for. They are cute, but they won't go full screen and they are not as good as some of the other ones I've seen. I'm not sure how else to search them.....anybody else know what I'm talking about??

I thought I had a lot more to share, but right now my mind is just busy with so many things. So, I'll finish with this.....13 days to go....

Another peep who didn't make the last photo


  1. McDonalds next week ???- hee hee hee!! I would be more than happy - that could be a fun new trend! Hope the Nexium works and that your day is puke free! How were the wings?

  2. Hoping the switch in meds is what she needs.

    Unfortunately, I don't know of the story book CDs you are referring to. A lot of help I am, eh?

    I hope you guys have a great day tomorrow!


  3. Hope the new med works better! Hugs!

  4. Love the countdown.
    Good luck with nexium. We're on 2x/day now. It worked well at first, but notsomuch these days.
    I'm done with therapy until Monday. Aaahhhh.

  5. I hope the nexium works for Lillian. Ashley was on prevacid when she was using her g-tube as well and she struggled to keep food down all the time. She is also 21lbs like Lillian .. and my Ashley eats tons now but is still unable to gain weight but doesn't need the reflux meds anymore .. her puking was related to the diet in a can you need with the tube. It's much easier for her to keep down and digest table food.